Today Bennett had an appointment at our local
Botox clinic for a follow-up to the injections he received in February and a reassessment for future treatment. As I've mentioned in the blog, we saw very little improvement from
Botox. If you ask Jim and I we would say we saw nothing.
From the beginning, we were concerned about
Botox treatments. Many parents have seen fantastic results and the injections have helped so many kids. Despite our reservations, that's why we were willing to try it at least once for Bennett. I wasn't sure what the doctor would recommend this time but I knew if he suggested it again we would have a tough decision. Despite the fact that it is commonly used for cerebral palsy and has been for a number of years,
Botox still hasn't been approved specifically for
CP. There are no long term studies (that I have been able to find) that indicate the effects of repeated treatment.
Needless to say, I was relieved when the doctor said no more
Botox - at least for now. He'll be reassessed in January and once again Jim and I will make our decision at that time. The doctor remains a bit
puzzled by Bennett's unique gait which is not characteristic of
hemiplegia at all. He thinks the biggest factor affecting Bennett's walk is tightness in his hip and has recommended a stretching and exercise program to help with this. Hopefully that will help enough and we'll be able to avoid the
Botox decision again.